Prof. Dr. Ruth Horn
| Phone: | 0821 598 71008 |
| Email: | ruth.horn@med.uni-augsburgmed.uni-augsburg.de () |
| Room: | 04-EG.A012 (Faculty of Medicine / Gutenbergstra?e 7) |
| Address: | Gutenbergstra?e 7, 86356 Neus?? |
| Postal address: | Universit?tsstra?e 2, 86159 Augsburg |
Ruth works on ethical questions raised by medical practices and new technologies at the beginning and end of life in different socio-cultural contexts. Her research is at the intersection between sociology, bioethics and law/social policy. She has developed a comparative empirical bioethics approach to understand how ethical problems arise and are addressed in clinical settings where ethically sensitive decisions are made. Her approach combines literature review (e.g. professional literature, legal texts, professional guidelines, daily media), concept analysis (e.g. autonomy, dignity, empathy, solidarity in different socio-cultural contexts) and ethnographic research (interviews, observations, focus group discussions).
?
Beginning of Life
Ruth's current research focuses on ethical issues arising from the clinical implementation of genomics in antenatal care. She is leading an? ESRC-funded project?exploring the ethical questions raised by the introduction of non-invasive prenatal testing (NIPT) into routine antenatal care in England, France and Germany. Previously, she has done research on the ethics of the prenatal assessment of genomes and exomes as part of the UK-wide? PAGE project.?
?
Genomics
Ruth is co-lead and founder (with Marie Gaille, CNRS) of? UK-FR GENE?(UK-France Genomics and Ethics Network), a network for British and French researchers, policy-makers and?practitioners?to reflect on the ethical questions arising from the clinical applications of genomic technologies in each national context. If you are interested in our network, please get in touch!
?
End of Life
In her previous research, Ruth has examined ethical questions at the end of life (e.g. assisted dying, continuous deep sedation, advance directives) with a particular focus on the tensions between patient autonomy and physicians' responsibility to protect life.
?
Covid-19
Ruth is country team leader of the French study ' COVID-19: Comment cela vous affecte-t-il?' which is part of a multinational project on 'Solidarity in times of pandemics', led by Professor Barbara Prainsack at the University of Vienna.
Ruth Horn is professor of medical ethics and deputy director of the IEHHS, University of Augsburg and associate professor of ethics at the University of Oxford. She studied sociology at the Ludwig-Maximilians University, Munich, and the University of Paris Diderot. In 2009, she completed her PhD in Sociology of Ethics at the Ecole des Hautes Etudes en Sciences Sociales, Paris. From 2010 to 2013, she was a Marie Curie Fellow at the Centre for Ethics in Medicine, University of Bristol. Since 2013, Ruth has been a member of the? Ethox Centre, University of Oxford. In 2021, she joined the IEHHS, University of Augsburg. Ruth is also an associate member of the? SPHERE?research centre, CNRS, University of Paris Diderot.
?
Ruth is regularly engaging with and contributing to the development of policy:
?
Inter-/National level
2022: Ethical Guidance of the UK Joint Committee on Genomics in Medicine (R. Horn, A. Lucassen, A. Hall): ''. Royal College of Physicians, Royal College of Pathologists, and British Society of Genetic Medicine.
2020: Contributor to Written evidence from the Wellcome Centre for Ethics and Humanities (COV0156) into The Government’s response to COVID-19: human rights implications. 2020: https://committees.parliament.uk/writtenevidence/8681/html/
2019-2020:?Chair of the British Society of Genetic Medicine (BSGM) working group on ‘prenatal, preconception, pre-implantation genetic testing/diagnosis’, BSGM Ethics and Policy Committee.
2019: Review of the Royal College of Obstetricians and Gynaecologists’ Scientific Impact Paper on ‘Evidence to Support the Clinical Utility of Prenatal Exome Sequencing in Evaluation of the Fetus with Congenital Malformations’.
2018:?Review of Briefing Note ‘Whole genome sequencing of babies’,?Nuffield Council of Bioethics.
2018: Policy-consultation with the French ‘General Inspectorate of Social Affaires’ (Inspection General des Affaires Sociales, IGAS), to inform report ‘?valuation du plan national 2015-2018 pour le développement des soins palliatifs et l’accompagnement en fin de vie’ (eds.?N. Bohic, F. Fellinger, M. Sa?e and L-C. Viossat), telephone interview with L.-C. Viossat, 23.01.2018.?
2017: Advisory group on ‘Advance Directives“ of the French National Centre of Palliative Care and the End of Life (Centre National des Soins Palliatifs et de la Fin de Vie), Paris, resulting in the report (eds.?I. Marin, S. Bretonniere) ‘Un an de politique active en faveur des directives anticipées. Quels progrès, quelles limites, quelles pistes pour l’avenir ?’, 2018.
2014: Policy-consultation with the Parliamentary Mission of Information on “End of Life”, organised by J. Leonetti and A. Claeys, French National Assembly, Paris, 08.10.2014.?The resulting report informed the 2016 law on the end-of-life ‘Loi 2016-87 du 2 février 2016 créant de nouveaux droits en faveur des malades et des personnes en fin de vie. Journal Officiel 2016.?0028’.
?
Local level
2020: ‘Guidance for research in response to humanitarian emergencies’,?CUREC, University of Oxford
2020:?‘Data Handling Scoping’ (workshop),?CUREC, University of Oxford
2019: ‘Empirical studies involving qualitative research methods’ (OxTREC application?guide)
?
?
Awards
2024: Adjunct Professor of Medical Ethics, University of Augsburg
2020: Associate Professor in Ethics, Medical Sciences Division, University of Oxford
2015: University Research Lecturer, Medical Sciences Division, University of Oxford?
?
Research grants/ PI
2023: Deutsche Forschungsgesellschaft, Middle East Cooperation,?HO 7477/1-1, PI, Co-PI: Prof. Aviad Raz, Ben Gurion University, IL, Project title: 'Genetic testing and/or screening for cystic fibrosis in Israel and Germany: The interplay of policies and socio-ethical considerations', �432.424.
2020:?Economic and Social Research Council, Research Grant,?ES/T00908X/1, Project title: ‘Non-invasive prenatal genetics and genomics in England, France and Germany - Exploring practical ethical issues 'on the ground'’, ?908.340.
2020:?Medical Division COVID-19 Research Response Fund, British Academy Special Research Grants: Covid-19, Co-I, Project title: ‘COVID-19: Comment cela vous affecte-t-il?, Une étude qualitative comparative et longitudinale’, country lead for French study arm of multinational project: ‘Solidarity in times of a pandemic: What do people do, and why?, led by Prof. B. Prainsack, University of Vienna, ?19.250.
2020: NDPH Pump Priming Award, Nuffield Department of Population Health, University of Oxford, Co-I, to investigate the ethics of ‘Synthetic Cohort Studies and Biobank’, ?28.590.
2013 – 2016: Ethics and Society Research Fellowship, 100553/Z/12/7, Wellcome Trust, PI, Project title: Between patient autonomy and physicians’ responsibility to save life: The implementation of advance directives in three European countries (England, France, and Germany), ?173.658.
2010 – 2012: Marie Curie Intra-European Fellowship, ADVANCED-FP7-PEOPLE-2009-IEF-254825,?European?Commission, PI, Project title: Advance directives in England and France, �171.741.
2010-2012: Post-doctoral Grant,?Ligue Nationale Contre le Cancer, PI, �70.000.
2005 – 2009: PhD Grant,?Caisse Nationale d’Assurance Maladie des Travailleurs Salariés?(CNAMTS), PI, �60.000.
?
Small grants
2020: Seed-Meeting Grant, Co-I, Higher Education, Research and Innovation Department, Embassy of France, London, workshop entitled ‘UK-FR GENE (Genomics and Ethic Network)’, October 2020, ?6000.
2019: Big Data Institute Workshop Grant, University of Oxford, PI, to contribute to a French-UK workshop entitled ‘Comparative Perspectives on Ethical, Legal and Social Issues of Genomics in Research and Practice’, ?7800.
2019: French Embassy Workshop Grant, Co-I, Higher Education, Research and Innovation Department, Embassy of France, London, to contribute to a French-UK workshop entitled ‘Comparative Perspectives on Ethical, Legal and Social Issues of Genomics in Research and Practice’, �2500.
2014 – 2018: Junior Research Fellowship, Linacre College, Oxford, ?300 per annum.
2014: Society and Ethics Small Grant, Wellcome Trust, PI, to organise a workshop entitled ‘Autonomy and Solidarity two conflicting values in bioethics? British and French perspectives on two core values in health care and medicine’, ?3.070.
?
Visiting fellowships
Sept/Oct 2020: Guest researcher of the DEA Programme (Directeurs d’?tudes Associés, or Associate Research Directors), Fondation Maison des Sciences de l’Homme and French Secretary of State for Universities, Paris, �3400.
October 2017: Brocher Foundation Residency Fellowship?
Project: Prenatal whole genome/exome sequencing and professional responsibilities in shaping public healthcare provision.?
March 2017: Guest Professorship, University Paris 7, Paris Diderot, SPHère
Project: Ethical issues of prenatal whole genome sequencing �3800.
Nov/Dec 2012:?International Visiting Fellowship in Medical Ethics, Institute for Medical Ethics and History of Medicine, Ruhr-University, Bochum (GER)
Project: Advance directives in England, France and Germany, ?4000.
May 2012:Visiting Scholar, Hastings Center (NY, USA)
Project: Ethical and economic aspects of advance directives
April 2012: Visiting Scholarship Caroline Miles, The Ethox
Project: Legal and ethical issues of advance directives ?2000.
Since 2022 Member of the scientific advisory boards of the German Human Genome-Phenome Archive
Since 2021 Member of the CNRS Ethics Committee ( COMETS)
Since 2021 Member of the UK? Fetal Genomics Group?der British Society for Genetic Medicine.
Since 2020 President of the? European Association of Centres of Medical Ethics?(EACME).?
Since 2020 Chair of the working group ‘Prenatal Genetic Testing’ of the? British Society for Genetic Medicine.
Since 2018 Co-lead and funder of? UK-FR GENE?(UK-France Genomics and Ethics Network)
Since 2018 Member of Oxford Tropical Research Ethics Committees?(OxTREC).
2018-2020 Co-lead of the discussion group ‘Ethics und AI’, Big Data Institute Film Discussion Group, University of Oxford.
2018-2020 Secretaire General of the EACME.
2016-2018 Treasurer of the EACME.
2017 Member of the advisory group on ‘Advance Directives“ of the French National Centre of Palliative Care and the End of Life (Centre National des Soins Palliatifs et de la Fin de Vie), Paris, resulting in the report (eds. I. Marin, S. Bretonniere) ‘Un an de politique active en faveur des directives anticipées. Quels progrès, quelles limites, quelles pistes pour l’avenir ?’, 2018.
?